Scared Right Now

I’m feeling really scared and vulnerable right now. I guess I’ve come to my blog because it’s my sanctuary and my space to talk and confess my emotions.

I just went on to the NHS website and it says

The life expectancy of a person with sickle cell disease has increased significantly over recent decades. A person with the condition can expect to live into their late 40s or early 50s


I know life can be taken at any time but I never imagined having a limit. Having the top on the jar. I posted a photo on insta and in the caption I put “I’m going to have my best day everyday” but what if I can’t.

I want to prove the NHS wrong and I’m going to fight against their stupid predictions. But still inside I’m so scared. I’m 25 and if what they say is right, then that’s already 50% of my time gone.

And so to end this night and to start a new journey tomorrow, (one that is full of light) I just want to say that if anyone I have ever met or known is reading this then know that I am grateful for the moments we shared, I’m definitely not perfect or even close to being the woman I want to be but I’m working on it for the next part of my life.

Love is so important to me and I want everyday from this point on to have a little love.


SS x